And after that the dark!
Buy now: To What Green Altar: A Dementia Caregiving Journal, Volume II
“I forgot how to use the microwave,” said Emma one evening in 2005.
Emma was beautiful, petite and feminine, loved travel, entertaining and humor. Multi-talented, she played the piano and electronic organ and was an accomplished watercolorist. She raised toy poodles, one of them becoming a champion. She loved hosting dinner parties and long weekends for family and friends at her beachfront home in Southern New Jersey. Her friends raved about these events until their dying days.
Even a tip helps support my writing (OK, and helps keep me awake so I can finish writing the piece): Buy me a coffee . . .
Then Emma was diagnosed with dementia. She was 90. She needed help. There was no one but me. I felt the floor of my chest open and my heart plunge into my stomach. My lifestyle and the self I knew ceased to exist thenceforth.
Thus began my mother’s and my decade-long trek through murky tunnels and craggy paths. I stumbled often. Emma simply fell: I ran and got neighbors to help pick her up. I, the unpaid sole caregiver, often found no response of help from state and healthcare agencies. There were days when I told healthcare aides to leave and never come back, days when the aides left Emma alone for hours without telling me.
Only near the end did we find the extraordinary support team we needed. For me the experience was spiritually life changing.
I have invited poet John Keats to help me begin the story of the slow, ravaging remains of our long journey, Volume II: To What Green Altar.
Thou still unravished bride of quietness,
Thou foster child of silence and slow time,
Sylvan historian, who canst thus express
A flowery tale more sweetly than our rhyme:
What leaf-fringed legend haunts about thy shape
Of deities or mortals, or of both, …
… Who are these coming to the sacrifice?
To what green altar, O mysterious priest …
… Thou, silent form, dost tease us out of thought
As doth eternity. Cold Pastoral!
When old age shall this generation waste,
Thou shalt remain, in midst of other woe
Than ours, a friend to man, to whom thou say’st,
“Beauty is truth, truth beauty”—that is all
Ye know on earth, and all ye need to know.
—John Keats
Excerpts from
“Ode on a Grecian Urn”
Published in 1820
The odes are said to be Keats’ effort to discuss the relationships among the soul, eternity, nature, and art, the Romantic era perception of the mind as an imaginative synthesizing, not analytical, power.
They rode horseback into the great Central Valley of Alta California and the Sierra Nevada foothills. Lieutenant Gabriel Moraga and his expedition sought suitable sites for Spanish missions. Hot, dry and dusty, they had traveled long without water. Mercifully, on September 29, 1806, the thirsty men and their horses came upon the banks of the river. Gratefully relieved, they named the river El Rio de Nuestra Señora de la Merced, The River of Our Lady of Mercy.
Front cover photo, “To What Green Altar,” Merced River, Yosemite Valley, California. The book is available on Amazon.
The first part of our journey ended thus: And so, I gently set our little boat into the stream. I light the candle on deck. Ahead, Emma’s condition takes a sudden turn after she has become too weak to climb the stairs to her bedroom. There she had been surrounded by her own things—her silver comb and brush set she has had from childhood, her fine furniture, her king-size bed and her sumptuous white comforter with the eyelet border, all her pretty, feminine things. Now she will be sleeping in the hospital bed in the living room; she will continue to use her walker, eat at the dining room table, and be given sponge baths in the downstairs powder room. Her Dr. Patel predicts that she could remain on this plateau for up to six months, from the end of July until around Christmas. So far, his predictions have been accurate.
That was in August 2011, a month before Emma’s ninety-seventh birthday. Just after Christmas our little boat sailed around a sharp bend, and there we encountered the rapids.
Emma became agitated. One night I sat beside her until dawn, holding her hand; that calmed the storm that night. Yet the storm persisted throughout the month of January. She didn’t know how she got on this boat, and she wanted off; she wanted out of here: “How do I get out of here? Can someone tell me how to get home?”
To hear this cry is heartrending. Maybe this plight is heartrending for us both. Imagine if you were she.
When she was a child, Emma loved spending her summers at her Aunt Mary’s little farm across the bay from Atlantic City. When I was a child, Emma sent me to spend a week some summers at Aunt Mary’s farm. On her bedroom wall, opposite the foot of her bed, Aunt Mary hung a framed poem that Alfred Lord Tennyson wrote in 1889, near the end of his life. Even at eight or nine years old, I stared at that poem; it gave me thought: I observed myself, born eight years ago, and Aunt Mary, born a few years before Tennyson wrote his poem; I was beginning, she was ending; I reflected on the impermanence of Tennyson’s life, the immortalization of his words. I wondered if each night while drifting into sleep Aunt Mary contemplated those words hanging steps from her bed there in her bungalow with the little produce stand out front at the side of the road, with the blue hydrangeas beside the low front steps, the deep, screened porch, the hanging swing, and the rocking chairs that you didn’t dare rock when they were empty—an empty chair rocking bespoke death.
Crossing the Bar
Sunset and evening star, And one clear call for me!
And may there be no moaning of the bar,
When I put out to sea,
But such a tide as moving seems asleep,
Too full for sound and foam,
When that which drew from out the boundless deep
Turns again home.
Twilight and evening bell,
And after that the dark!
And may there be no sadness of farewell,
When I embark;
For tho’ from out our bourne of Time and Place
The flood may bear me far,
I hope to see my Pilot face to face
When I have crost the bar.
—Alfred Lord Tennyson, 1889